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EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association
EPDA - European Parkinsons Disease Association
LIFE WITH PARKINSON'S
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European Parkinson's Disease Association on LinkedIn

About EPDA

  • Parkinson’s is a serious chronic neurodegenerative disease with no cure, which affects all aspects of daily living
  • Parkinson’s is the most common neurodegenerative disease after Alzheimer’s.  The incidence of Parkinson’s is forecast to double by 2050 primarily as a result of the ageing population
  • Treatment and management is available for a number of aspects of the disease but not yet accessible to all
  • Ongoing research has resulted in significant improvements but more is needed to delay, stop or even reverse Parkinson’s

The European Parkinson's Disease Association (EPDA) is a non-political, non-religious, and non-profit making organisation concerned with the health and welfare of people living with Parkinson's disease and their families and carers.

Founded in June 1992 in Munich, with a membership of nine European Parkinson's patient organisations, the EPDA currently has a membership of 45 organisations across Europe, see www.epda.eu.com/members.

The EPDA also has 7 Associate (non-voting) Members:

  • Association of Physiotherapists in Parkinson's Disease Europe (APPDE)
  • Atlantic Euro Mediterranean Academy of Medical Science (AEM AMS)
  • Division of Movement Disorders of the Russian Society of Neurologists
  • European Federation of Neurological Association (EFNA)
  • European Federation of Neurological Societies (EFNS)
  • National Tremor Foundation (NTF)
  • The Movement Disorder Society (MDS)

Our mission statement

  • The EPDA is the only European umbrella organisation for Parkinson’s disease and represents 45 member organisations advocating for the rights and needs of more than 1.2 million people1 with Parkinson’s and their families
  • Its vision is to enable all people with Parkinson’s in Europe to live a full life while supporting the search for a cure
  • The EPDA seeks to achieve this by raising awareness and reducing inequalities in the treatment and management of Parkinson’s disease across Europe.
  • Founded in June 1992 in Munich, the European Parkinson’s Disease Association (EPDA) is a non-political, non-religious, and non-profit organisation.

To further extend the voice of the EPDA, strong links have been established with the

  • European Commission (EC)
  • World Federation of Neurology (WFN)
  • World Health Organization (WHO)

Our objectives

The key objectives of the EPDA are to achieve the best possible quality of life for those with Parkinson's and their carers by providing and continually updating medical and caring best practice and making this information readily available to people with Parkinson’s, their carers and families, and healthcare professionals by:

  • Facilitating dialogue and sharing of successful activities across member organisations (MOs) by:
    • acting as facilitator for frequent, quality dialogue and support across the MO network
    • acting as a central contact and conduit for MOs so that they can access specific resources that already exist within other MOs to maximise the impact of the MOs’ pooled resources across Europe
  • Provide targeted information and  support to MOs to assist them in achieving:
    • their core aims and objectives (for example, education tools and training support for lobbying national political stakeholders)
    • information and resources to allow MOs to strengthen the impact of their projects and initiatives within their own country
  • Act as a voice for Parkinson’s in Europe with key European decision makers raising awareness of important and emergent European agendas with MOs, that may impact MOs’ ability to achieve their core aims and objectives in future


For further information on the work of the EPDA


Websites and links


The Association is a charitable organisation registered in Bruxelles (Numéro de l'association: 8727/2000, No TVA ou no entreprise: 465299201) and governed by the Belgian law of 25 October 1919, modified by the Law of 6 December 1954.

 

Reference

  1. P. Andlin-Sobocki et al, European Journal of Neurology 12 (Suppl 1) June 2005