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EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association
EPDA - European Parkinsons Disease Association
LIFE WITH PARKINSON'S
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Speech and facial expression

Communication between people is an important part of everyday life – making connections outside the home, as well as within the family.

This type of communication involves many aspects, including words, body language and the manner of speech.  In people with Parkinson’s, slow or reduced muscle movements can result in the face showing less expression than usual, making communication more difficult, and can be misinterpreted as annoyance, disinterest or as a lack of understanding.

Changes to the function of facial/throat muscles can also affect the voice, producing speech that may be quiet, hoarse, hurried or hesitant.  Therefore, it is important that any changes are understood and managed promptly and effectively.

A doctor or Parkinson’s nurse will be able to recommend a speech and language therapist to help with effective tips and exercises for minimising any speech problems.  Advice on good posture, exercises to strengthen the vocal/facial muscles, and general guidance on communicating clearly can all help to manage the situation.

 

My name is Jorge and I have had Parkinson’s for seven years and still find it very hard to deal with, especially when you have to be social.  The other day I was invited to an official dinner and my anxiety always increases at such times.  The pressure to “perform” feels too much and the quick “give-and-take” that is so much part of a normal life, is impossible. Parkinson’s also makes my voice different and I often speak, involuntarily, in a near whisper.  Add to this a face that is empty of expression — the so-called “Parkinson’s Mask” - and you have a clear picture of me as “a loser” in such situations.  God, I hate not being myself anymore!

Jorge, 56
Barcelona, Spain