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EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association EPDA - European Parkinsons Disease Association
EPDA - European Parkinsons Disease Association
LIFE WITH PARKINSON'S
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Summary

Mrs Kristina Mueller’s life with Parkinson’s can be divided into four stages. The first stage lasted five years, during which time she maintained good symptom control on oral treatment and enjoyed a high quality of life. The yearly cost for medication and doctor’s visits during this period was Euro 2,594/GBP 2,075.

During the second stage, which also lasted five years, motor fluctuations started and Mrs Mueller suffered severe dyskinesias. This led to a reduced quality of life, several hospital visits, doctors’ appointments, medicine adjustments and sick leave. Costs per annum rose to approximately Euro 124,590/GBP 99,672.

The third stage is defined by a period of little more than six months when Mrs Mueller underwent apomorphine pump treatment. This led to improvements in her quality of life and she returned to work. However, the treatment is expensive and, despite more than a fifty per cent reduction in the cost of healthcare, the total cost was Euro 124,590/GBP 99,672.

In the fourth stage, due to side effects and a reduction in the effectiveness of apomorphine, Mrs Mueller began receiving levodopa/carbidopa treatment. This improved symptoms and she enjoyed a better quality of life once more. Costs for the first year were slightly over Euro 40,000/GBP 32,000, which included testing and the start of levodopa/carbidopa treatment. Over subsequent years, costs were reduced to a little over Euro 35,000/GBP 28,000 per annum and were almost exclusively medical, with only a very small amount going towards healthcare.

(This report is based on a real life patient’s case history, with some details being modified.)